Lipoedema Resources

an abnormal build-up of fat and connective tissue in the legs, thighs, buttocks, and sometimes the arms (Wounds UK, 2017). Due to lack of understanding and no definitive diagnostic test, the condition is often confused with conditions such as lymphoedema or obesity (Child et al, 2010). This paper presents the findings of two surveys — a patient and healthcare professional one — undertaken by Daylong Direct in association with Lipoedema UK and this journal. The former explored the multifaceted challenges faced by individuals
living with lipoedema, including diagnostic delays, treatment gaps, emotional impact, and unmet healthcare needs, while the latter captured data on healthcare professionals’ awareness and knowledge of lipoedema and treatments available, highlighting the need for more education to improve patient care. The survey results provide valuable insights for improving clinical practice and patient support.

Lipoedema is a challenging condition for patients, health and social care professionals. Lack of understanding about the condition leads to delayed diagnosis and poor support with self-management. This paper draws on key evidence, best practice guidelines for the management of lipoedema, and a patient story, to provide insights into the presentation, diagnosis, impact and management of the condition. It also identifies key points for practice for community nurses.

This article is the second in a two-part series on managing common lower limb problems encountered in primary care. The first article in the series (Brown, 2017) discussed the causes of oedema and its relation to underlying conditions, such as venous disease, lymphoedema and lipoedema. This article investigates skin care, the management of ‘wet legs’ and the different types of compression therapy available to non-specialist community nurses.