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There are an increasing number of people being diagnosed with dementia. Dementia is a life-limiting condition for which there is currently no effective treatment or cure to alter its progressive course. UK dementia policy has tended to focus on living well with dementia and less so on dying well with dementia, and there is a consistent difficulty in recognising when a person with dementia enters the end-of-life phase. The disease trajectory of dementia is noted as being unpredictable, especially when compared to those of other terminal conditions and, in addition, when there are other lifethreatening conditions comorbid to the dementia. This paper uses two anonymised case studies that consider dying with and dying from dementia respectively, and offers rationales to support better
recognition of dying for quality end-of-life care