Sickle cell disease (SCD) is a debilitating, lifelong condition which places significant
societal and economic burden on patients, caregivers and healthcare systems; the realities of living with SCD for both patients and caregivers significantly impact quality of life,
and include mental health issues, as well affecting ability to attend and be successful at school or work, therefore reducing earning potential (Sickle Cell Health Awareness,
Perspectives and Experiences (SHAPE) survey, 2022).